Working with Advocacy Groups: Making it a Win-Win Collaboration

Patient advocacy groups in clinical trial development

Working with Advocacy Groups: Making it a Win-Win Collaboration

More and more, sponsors recognize the importance of the patient perspective in clinical research. And when it comes to clinical research for rare and orphan diseases, the relationship with patient and advocacy groups is especially important. I’ve been fortunate to work with different sponsors to navigate this space, over my years at the NIH and now at UBC.

Join me on September 7 - 8 in Boston at Arena’s Outsourcing in Clinical Trials (OCT) – New England.  On day one, I’ll collaborate with Isabelle Lousada from the Amyloidosis Research Consortium to speak about:

  • How sponsors and advocacy groups can work collaboratively to support clinical research 
  • The do’s and don’ts – with real world examples of missteps and successes
  • Critical elements to making a partnership work for your next study

I look forward to speaking with you at the conference. If you’d like to connect before or after, feel free to contact me.

To learn more about our big solutions for small patient populations, click here. Then, contact us to find out how UBC can help you do more for your rare-disease patients.