The growth of social media interactions has played a critical role in advancing knowledge and awareness of rare and orphan diseases. Social media tools have helped stakeholders working in rare disease clinical development to increase awareness of diseases or identify patients for clinical trials. Social media can also help patients and advocacy groups to navigate a specific disease − whether it’s to build understanding of the disease, help create a patient community or find medical experts.
National Organization for Rare Disorders
Moving pharmaceutical products from development into commercialization is no small feat. Doing so for a rare disease and improving speed to therapy is even more challenging — but, because of UBC’s unique solutions and strategic partnerships, it’s a challenge that we can take on.
For rare-disease patients, a successful therapeutic journey is as unique as they are. Here is a look at some of the most pressing questions rare-disease patients face during their therapeutic journey.
The 50th DIA Annual Meeting, which kicks off today, promises to be a blast. We’re looking forward to presenting some unique abstracts and connecting with industry colleagues at our social event. But the highlight of the event for our team is the chance to have fun while helping patients in a unique way.
Today kicks off the 23rd annual Partnerships in Clinical Trials (PCT) conference where we’re looking forward to connecting with many of our industry colleagues, having a little fun, and taking time to give back.