National Organization for Rare Disorders

Social Media Strategies to Make Your Message Heard

The growth of social media interactions has played a critical role in advancing knowledge and awareness of rare and orphan diseases. Social media tools have helped stakeholders working in rare disease clinical development to increase awareness of diseases or identify patients for clinical trials. Social media can also help patients and advocacy groups to navigate a specific disease − whether it’s to build understanding of the disease, help create a patient community or find medical experts.


Collaborating for the Cause

Moving pharmaceutical products from development into commercialization is no small feat. Doing so for a rare disease and improving speed to therapy is even more challenging — but, because of UBC’s unique solutions and strategic partnerships, it’s a challenge that we can take on.

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