Rare-disease patients need special attention, not only upon therapy initiation, but throughout their entire therapy journey. UBC has the capabilities to start at the very beginning of this journey — transitioning patients from a trial drug to a commercialized product — and still provide high-touch care — coordinating pharmacy triage and beyond.
nursing for rare disease patients
Today, rare-disease communities around the world are coming together to raise awareness for the roughly 7,000 different types of rare diseases and disorders. Shazia Ahmad, our Patient and Physician services rare-disease expert, will be attending Rare Disease Day at NIH to celebrate this year’s theme, “Patient Voice.”
On February 28, patient communities around the world will celebrate Rare Disease Day to raise awareness about rare diseases and their impact on patients’ lives.