Each year since 2009, the National Institutes of Health (NIH) Clinical Center and National Center for Advancing Translational Sciences (NCATS) has hosted Rare Disease Day at NIH to participate in the global observance. This year, we attended the event and heard several inspiring presentations from a range of rare disease stakeholders.
rare disease patients
Shazia Ahmad, Director, Patient and Physician Services, participated in Rare Disease Day 2016 while attending the National Institutes of Health (NIH) earlier this month. In our latest blog post, she reviews three key insights from the event.
Today, rare-disease communities around the world are coming together to raise awareness for the roughly 7,000 different types of rare diseases and disorders. Shazia Ahmad, our Patient and Physician services rare-disease expert, will be attending Rare Disease Day at NIH to celebrate this year’s theme, “Patient Voice.”
For rare-disease patients, a successful therapeutic journey is as unique as they are. Here is a look at some of the most pressing questions rare-disease patients face during their therapeutic journey.
Moving pharmaceutical products from development into commercialization is no small feat. Doing so for a rare disease and improving speed to therapy is even more challenging. Check out our case study video to learn what an integrated program model can do for you and your patients with rare diseases.
On February 28, patient communities around the world will celebrate Rare Disease Day to raise awareness about rare diseases and their impact on patients’ lives.