rare diseases

Insights for Supporting Unique Patient Populations

Members from both UBC and Accredo recently attended NORD’s Rare Diseases and Orphan Products Breakthrough Summit in Arlington, VA. This was a great opportunity for leaders from both organizations to collaborate with key industry stakeholders to discuss the progress as well as challenges in rare disease diagnosis, clinical trials, patient engagement and access to orphan products.

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Collaborating for the Cause

Moving pharmaceutical products from development into commercialization is no small feat. Doing so for a rare disease and improving speed to therapy is even more challenging — but, because of UBC’s unique solutions and strategic partnerships, it’s a challenge that we can take on.

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Care for the Rare

Rare diseases are a hot topic in healthcare today. Google “rare disease” and you’ll find hundreds of news stories about the research efforts of many companies and advocacy groups. Interestingly, 40% of novel drug approvals by the FDA in 2014 were indicated for rare conditions.

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